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Bloods o.k, but have spongy joint & new pains? Options
jkeluk
#1 Posted : Thursday, September 22, 2011 9:26:06 PM Quote
Rank: Newbie


Groups: Registered

Joined: 7/31/2010
Posts: 6
Location: Nr. Dover. Kent
Hi everyoneSmile

Can someone enlighten me please... Am new to this so don't know what to expect. Can you help???

My main probs last year when diagnosed with ra were:-


High 'Rheumatoid Factor'/ positive 'anti ccp' results.

Swollen finger joint on left hand.

3 (felt broken) toes + big toe/ bunion area on left foot .

Big toe/bunion area on right foot.

Swollen ankles.

Painful to walk and felt so fatigued


There are probably things I have forgotten to add above that may be important so please ask questions if you need to know any more info ...

I take 15mg Mtx weekly, folic acid 5mg next day, and plaquenil 2 x daily now, amongst others & these have bought down the swellings and put my finger and 3 toes in remission(my words as I don't have the pain & swelling in them now).

Recently, the big toe joint/bunion area on the left foot feels spongy and is very slightly swollen,mildly warm, but not hot or red inflamed. When I showed this to my gp and to the rheumy nurse, they both said that my bloods/inflamatory markers were excellent now, and kind of dismiss this spongy swelling...

I have read on the internet that you can still have active ra even though the bloods come back as normal...

What I want to know is should I be worried about it and make sure i get treatment for this spongy toe joint or is my gp & rheumy nurse right??? sort of put up with it???

Please put my mind at rest...Confused Jan x

helixhelix
#2 Posted : Friday, September 23, 2011 9:38:49 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 2/7/2011
Posts: 66
Location: London
Hi there, sorry to hear you're not feeling so good. Personally I feel that if I'm not happy with my state then I keep asking 'till I get an answer I believe in or a solution. It's the only body I have, and tho' I may have RA I want it to work as best it can. It could well be that you have a bit of osteoarthritis in your toe related to the bunion, or it could be residual bit of RA that hasn't quite been controlled by meds yet - and maybe there's other things as well as feet are very complicated things. I would politely ask them again. Polly
Rose-B
#3 Posted : Friday, September 23, 2011 6:50:06 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset


Yes I beleive you can still have all the effects of RA although it may not shjow in your bloods.

Sounds like you should call you RA nurse and ask for advice.

Let us know how you do

Rose
smith-j
#4 Posted : Friday, September 23, 2011 8:34:35 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Jan

Sorry you are feeling pain. It can be very frightening when you are unsure what is going on. I have had RA for two years but my Rheumy team do not go by what my blood tests show. They talk to me, listen, inspect joints either by eye or taking x-rays if necessary and treat me accordingly. You can have a very low inflammation factor in your blood but still be in severe pain.

I would do as the other suggest and pursue this further and say that you are not happy about the pain and you know there is something wrong. My RA nurse once told me that really all the medical people should be given RA for a day and then they would not be so blase about the pain and discomfort we suffer.

Take care

Jackie
xx
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